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Turner Syndrome Foundation

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Be the Change

As an organization we keep an active blog so our community will have access to updated information not only about our happenings, but also Turner Syndrome. We publish between 2-3 posts per week, including at least 1 that is written by a volunteer blog writer.

The blog posts that we are looking for help writing will be based on existing content. This may include viewing one of our webinars and creating a "highlights" post, or summarizing existing content on our website (there is a lot of information, so this is a helpful way for us to break it down for people). Some supplemental research may be required.

Skills include
-Writing, editing
-Research from credible sources
-Summarizing
-Experience with Wordpress a plus, but not required

Candidates may apply here: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Community
Health & Medicine
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Research
  • Copy Writing / Copy Editing
  • Social Media / Blogging
  • Internet Research

GOOD FOR

N/A

REQUIREMENTS

  • Orientation or Training
  • We would like volunteers who are willing to commit 2-3 hours per week for a minimum of 3 months.

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