Children and Teen Program Volunteer

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Seeking a Volunteer To Help Organize, Further Develop and Work With Children and Teens in Our New Groups and Youth Programs!

Looking to give back in your community? Love working with kids and teens? Tech-savvy?

Now is your chance to share your time and talent with a vital organization assisting families affected by a rare bone disorder known as hypophosphatasia (HPP). Small, friendly office located in Parsippany, NJ serving children, teens, adults and families throughout the US and internationally is seeking a volunteer to work directly with staff, children/teen patients and families to assist with the development and day-to-day administration of our children's group (The Hippo Squad) and Teen Advisory Council (TAC).

Our organization requires the assistance of a skilled and passionate volunteer who can provide hands-on support for staff, while serving as a patient liasion for both of our youth-oriented groups. Duties include: administrative projects, program support and planning, direct contact with group members via phone/video chat, group chat leader responsibilities as needed, and other duties to administer the program as assigned. Experience using Canva or similar design programs, as well as social media is a plus, but not required. Experience working with clubs, youth organizations or similar areas is also a plus, but not required. Experience working with children/teens a must, patient support/disease experience also helpful but certainly not required.

This is a great opportunity to get hands-on experience and support new and growing programs to benefit children and teens! Students, professionals and retirees are all welcome, however we do require a long-term commitment for this role.

Extremely flexible hours, with mostly remote work possible.

Please contact bonnie@softbones.org if interested and available asap.