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SFDF Team Member

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Scleroderma and Fibrotic Diseases Foundation (SFDF)

  • 6 people are interested
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Looking for a way to contribute?

Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In many patients, scleroderma harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract. Few effective treatments exist, and there is no cure.

We recently released the first issue of Scleroderma Stories, a publication that sheds light on the experience of living with scleroderma through a series of interviews with scleroderma warriors around the world.

Read the first issue of Scleroderma Stories here:
issuu.com/thesfdf/docs/sclero_issue_1__pages_

The Scleroderma and Fibrotic Diseases Foundation, a 501(c)(3) nonprofit organization, is looking for people to join our team. We're looking for motivated people who can contribute in the following areas:
SOCIAL MEDIA - Help The SFDF gain and maintain our online presence (IG: @sclerofibroticfoundation FB: @theSFDF)
PROMOTION - Help The SFDF promote Scleroderma Stories so that our work can reach more people
INTERVIEWS - Help The SFDF find and interview more scleroderma warriors

Alternatively, if you have other talents that you think could benefit our mission to help the scleroderma and fibrotic diseases community, please get in touch!

TO APPLY, FILL OUT THE APPLICATION AT THIS LINK: https://forms.gle/JfLLU5BtMsJ4G88f6

More opportunities with Scleroderma and Fibrotic Diseases Foundation (SFDF)

No additional volunteer opportunities at this time.

About Scleroderma and Fibrotic Diseases Foundation (SFDF)

Location:

1118 ALA MOANA BLVD, APT 800, HONOLULU, HI 96814, US

Mission Statement

The SFDF is a 501(c)(3) nonprofit organization dedicated to improving the lives of all people affected by scleroderma and other fibrotic diseases.

Description

In addition to directly helping the scleroderma and fibrotic diseases community, The SFDF aims to educate others. We spread awareness with a goal of ensuring that more people can recognize the signs of scleroderma and realize the importance of research into scleroderma and other fibrotic diseases.

Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In many patients, scleroderma harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract. Few effective treatments exist, and there is no cure.

We recently released the first issue of Scleroderma Stories, a publication featuring the journeys of scleroderma warriors across the world. The first issue of Scleroderma Stories has reached over 3,900 people in 78 different countries. Read here: http://issuu.com/thesfdf/docs/sclero_issue_1__pages_

Community
Health & Medicine
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity, with no fixed address.

SKILLS

  • Teaching / Instruction
  • Event Design & Planning
  • Market Research / Analysis
  • Adobe Creative Suite
  • Fundraising
  • STEM

GOOD FOR

N/A

REQUIREMENTS

  • Must be at least 14

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