The ALS Association Iowa Chapter is looking for masks to send to Iowans living with ALS. Masks can be mailed to our Chapter office in West Des Moines or dropped off if you are local. We will provide further instructions to those who express interest.
Why? ALS does not make a person immunocompromised, however it does impact breathing. People with ALS oftentimes don't have the ability to cough as hard as others because the muscles that perform this function are weakened. Therefore, a respiratory illness like COVID-19 would be detrimental to their health and has a much greater potential to result in death. Many of the people we serve die of pneumonia because of this issue described above.
Most of the people we serve are shutting themselves in and avoiding contact with others. However, many of the people we serve are reliant on home health care workers to stay alive. They would benefit from masks for them, their caregivers and their home health workers to wear while they are visiting.
If you are interested in making masks for people living with ALS, below are some recommendations from the group Masks for Frontline Iowa: Fabric - Good quality quilters 100% cotton fabric for the Mask/Cover Ties - Unless otherwise requested, cotton fabric to make your own bias tape or store bought bias tape and can be cotton, poly or a blend. Thread - Use the best quality thread you have on hand No Filters, No Wire, Elastic ONLY when requested. No up-cycling of materials (new or pre-loved) - sheets, shirts, shoe laces, etc. We prefer masks come from a smoke-free home.
Here are IDPH suggestions - https://idph.iowa.gov/Portals/1/userfiles/7/Homemade%20Mask%20Design%20Guidance.pdf
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
The ALS Association is the only not-for-profit health organization in Iowa dedicated solely to the fight against ALS. As the preeminent ALS organization, The Association leads the way in research, patient and community services, public education, and advocacy - giving help and hope to those facing the disease.
The ALS Association, Iowa Chapter provides direct services, resources and support to Iowans affected by ALS through our care services and programs. The core Chapter services include:
Home Visits Equipment Loan Program Quality of Life Grant Program Patient and Family Support Groups ALS Specific Clinics Care Specific Advocacy Volunteer Program Communication and Assistive Device Program Information and Referral Services Community/Healthcare Education
Over 85% of the money raised through The ALS Association, Iowa Chapter stays local to provide services to Iowan’s impacted by ALS. We also support global, cutting-edge ALS research and participate in state and federal advocacy efforts to find additional treatments and a cure. There are approximately 250 Iowans living with ALS at any given time and our Chapter has grown from providing services to a handful of patients with ALS in the Des Moines area in 2003 to serving 220+ patients statewide in 2015.
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