During these uncertain times, how can we help?

As the world leader in volunteerism we feel a responsibility to unite our broader community, and to use this moment to become stronger.

See below to participate in our Impact Sector survey, access our COVID-19 Resource Hub, and explore our growing directory of COVID-19-specific and virtual volunteering opportunities.
Read More
 

Computer-Savvy Data Accuracy and Entry Volunteer

Save to Favorites

SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION

  • 11 people are interested
Image_202002170810

Looking to give back in your community?

Now is your chance to share your time and detail-oriented computer entry skills with a vital organization assisting families affected by a rare bone disorder known as hypophosphatasia (HPP). Small, friendly office located in Parsippany is seeking a volunteer who enjoys computer work, mainly data entry, within a simple cloud-based database. Training will be provided. System is fairly new and requires someone that possesses close attention to detail, along with strong analytical "detective" skills to identify errors and provide solutions for tracking and compiling data appropriately. Must be comfortable utilizing Microsoft Excel spreadsheets or Word documents for entry purposes.

Extremely flexible hours, 1-3 days per week preferred, with remote work possible in the future based on experience. Perfect for a recent retiree or experienced individual with a bit of free time on their hands. Note: this is a long-term role. Please contact bonnie@softbones.org if interested and available asap.

3 More opportunities with SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION

About SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION

Location:

121 HAWKINS PLACE SUITE 267, BOONTON, NJ 07005, US

Mission Statement

The mission of Soft Bones, Inc. is to provide valuable information, education and support for people living with hypophosphatasia (HPP), their families and caregivers. The Foundation promotes research of this rare bone disease through awareness and fundraising efforts.

Description

Founding:

Our founder's son was just 4 months old when she started to notice something was a little bit off. His wrists looked wide. He did not bear weight on his legs. He was not a strong sitter. Their pediatrician blamed it on low muscle tone and said this one "won’t be our athlete." But they could not let it go. What was causing the low muscle tone? Why did his wrists look like that?

That is when the obsessive research began. Our founder frantically scoured patient forums, read every possible website, emailed and chatted with patients, and conducted endless Google searches into all hours of the night.

At 18 months old, they finally had a diagnosis: hypophosphatasia (HPP). That was the one web search with results that left me breathless. Children diagnosed with HPP have a 50 percent chance of survival. Many go on to do quite well.

It was that single phrase that led us to start Soft Bones: The U.S. Hypophosphatasia Foundation. It was shocking to learn that there was no formal website with information on the condition. No place we could send friends and family who wanted to make a donation or learn more about HPP. Soft Bones was founded in 2009, after our founder's son was diagnosed with HPP, as a resource to help individuals and families to understand, manage, find proper care and promote adovcacy and research for this rare and potentially life-threatening disorder.

Advocacy & Human Rights
Health & Medicine
People with Disabilities

WHEN

We'll work with your schedule.

WHERE

1719 Route 10 EastParsippany, NJ 07054

(40.84039,-74.46017)
 

SKILLS

GOOD FOR

  • People 55+

REQUIREMENTS

  • Background Check
  • Must be at least 21
  • Orientation or Training
  • Extremely flexible hours, 1-3 days per week preferred, with remote work possible in the future based on experience. Perfect for a recent retiree or experienced individual with a bit of free time on their hands. Note: this is a long-term role.

Report this opportunity