- A group opportunity. Invite your friends.
-
15 people are interested
HDSA Orange County Team Hope Walk Committee
ORGANIZATION: Huntington's Disease Society of America Orange County Chapter
This opportunity is provided by VolunteerMatch's partner.
Please visit the new page to apply.
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
15 people are interested
Team Hope Planning Committee
HDSA Orange County Chapter is looking for energetic people to help with planning for this year’s event!
Expectations and roles include:
- Identify and engage corporate sponsors and in-kind donors.
- Recruiting and welcome new participants.
- Recruit/prepare event day volunteers.
- Work with HDSA communications staff on event promotions and media opportunities.
- Run the event on event day.
- Partner with HDSA Regional Development Officers.
- Specific tasks directly related to the type of event vary.
What is the Time Commitment?
In the months leading up to the event, there will be more time spent on meetings and activities.
- Event Attendance: 2-6 hours
- Committee Meetings: 4-6 meetings total, 60-90 minutes each
- Tasks (Sponsor Asks, Recruitment Calls, etc...) as needed (1-3 hours per week).
3 More opportunities with Huntington's Disease Society of America Orange County Chapter
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About Huntington's Disease Society of America Orange County Chapter
Location:
P.O. Box 28613, Santa Ana, CA 92799, US
Mission Statement
HDSA is the largest 501(c)3 non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today and hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the US. HDSA supports 37 Centers of Excellence at major medical facilities throughout the U.S., funds research towards the development of treatments and cures, hosts more than 170 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s disease for medical professionals and the general public. The Society is comprised of 57 local chapters and affiliates across the country with its headquarters in New York City.
Description
Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 250,000 are at-risk. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.
CAUSE AREAS
Community,
Health & Medicine,
People with Disabilities
WHEN
We'll work with your schedule.
WHERE
P.O Box 92799Santa Ana, CA 92799
(33.69674 ,-117.91209 )
DATE POSTED
November 12, 2024
SKILLS
- Marketing & Communications (Mar/Com)
- Interactive/Social Media/SEO
- Advertising
- Social Media / Blogging
- Fundraising
- Community Outreach
GOOD FOR
- Kids
- Teens
- People 55+
- Public Groups
REQUIREMENTS
- Must be at least 15
- In the months leading up to the event, there will be more time spent on meetings and activities.