- A group opportunity. Invite your friends.
-
5 people are interested
Angioma Alliance OC 5k walk/run
ORGANIZATION: Angioma Alliance
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
5 people are interested
Come out and support our participants who will be raising funds and awareness for people affected by cavernous angioma! We need help with registration, t-shirt distribution, course support, raffle and general event help!
More opportunities with Angioma Alliance
No additional volunteer opportunities at this time.
About Angioma Alliance
Location:
977 SEMINOLE TRL # 367, Charlottesville, VA 22901, US
Mission Statement
It is our mission to inform, support, and mobilize those affected by cerebral cavernous angioma (CCM) and drive research for better treatments and a cure.
Description
Angioma Alliance is a patient-directed advocacy organization for those affected by cerebral cavernous angiomas. Cerebral cavernous angiomas are relatively common tumor-like blood vessels in the brain and spinal cord that can hemorrhage and cause stroke-like deficits, seizure, and even death at any age. About 25% of those affected are diagnosed as children. Brain or spinal surgery is the only current treatment for the condition.
Our organization was founded in 2002 to achieve four goals:
Goal 1: Inform/Support: To use all available means to disseminate information about cerebral cavernous angiomas to those affected and their families, as well as establish a caring community to provide support.
Goal 2: Research: To advocate, facilitate and participate in cerebral cavernous angioma research in the pursuit of a complete understanding of the disease and, ultimately, a cure.
Goal 3: Physician Education: To ensure that all appropriate physicians are aware of cerebral cavernous angiomas and have ready access to the latest inform
Goal 4: Public Awareness: To heighten public awareness of cerebral cavernous angiomas to increase understanding, acceptance and funding for research and services.
CAUSE AREAS
WHEN
WHERE
22760 Olympiad Rd.Flo Jo ParkMission Viejo, CA 92692
DATE POSTED
July 12, 2019
SKILLS
GOOD FOR
- Teens
- People 55+
- Group
REQUIREMENTS
- up to three hours