- A group opportunity. Invite your friends.
-
3 people are interested
2019 RARE Patient Advocacy Summit
ORGANIZATION: Global Genes
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
3 people are interested
As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change. This year, the Summit will take place in San Diego at the Sheraton San Diego Hotel & Marina.
We are looking for volunteers to assist with bag stuffing, registration and scanning badges.
To see available shifts and sign up, please follow this link, https://www.titanvolunteers.com/volunteers/sign_up_individual/291-2019-RARE-Patient-Advocacy-Summit
Please reach out to events@globalgenes.org for any questions.
- Volunteers will receive one volunteer t-shirt to be worn during event
- Volunteers can sign up for as many or as few shifts as they would like
- At this time, Global Genes is not covering parking
- Some meals may be covered depending on the shift however snacks will be available
- Global Genes is not covering any costs for travel or hotel stays
More opportunities with Global Genes
No additional volunteer opportunities at this time.
About Global Genes
Location:
28 Argonaut, Suite 150, Aliso Viejo, CA 92656, US
Mission Statement
Our mission is to eliminate the challenges of rare disease. We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
Description
Global Genes™ is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope - the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.
CAUSE AREAS
WHEN
WHERE
1380 Harbor Island DriveSan Diego, CA 92101
DATE POSTED
June 24, 2019
SKILLS
- Event Management
- Event Planning / Management
- Ushering
- Donor Management
- Fundraising
- CSR / Volunteer Coordination
GOOD FOR
- Kids
- Teens
- People 55+
- Group
REQUIREMENTS
- Must be at least 16