• A group opportunity. Invite your friends.
  • 7 people are interested
 

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ORGANIZATION: TSC Alliance

  • A group opportunity. Invite your friends.
  • 7 people are interested
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The Step Forward to Cure TSC Nashville Walk walk brings together individuals and families impacted by a rare genetic disorder called tuberous sclerosis complex (TSC) with supporters committed to making a difference. TSC causes tumors to form in vital organs and is also the leading genetic cause of both epilepsy and autism and current estimates place tuberous sclerosis complex affected births at one in 6,000. Nearly 1 million people worldwide are estimated to have TSC, with approximately 50,000 in the United States.

Step Forward to Cure TSC is presented by the Tuberous Sclerosis Alliance, the leading organization dedicated to finding a cure for TSC, while improving the lives of those affected through: 1) the stimulation and sponsorship of research; 2) the development of programs, support services, and resource information; and 3) the development and implementation of public and professional education programs designed to heighten awareness of TSC.

We need volunteers to serve as 1)Walk Planning Committee; 2) Volunteer on the event day.

Walk Planning Committee Members would volunteer (April - October) on monthly calls to help with the logistics of the event. They will help recruit walkers, solicit local sponsors, walkers, silent auction items and help on walk day. Lunch is provided on the event date, and all volunteers will receive a walk day shirt. No experience is necessary. Training is provided

Volunteers on walk day - would arrive early to help with setup, registration, walk route and help with break-down of walk materials. Lunch is provided, any middle/high school students are eligible to receive (8) volunteer hours of community service. All volunteers will receive a walk day shirt.No experience is necessary. Training is provided.

More opportunities with TSC Alliance

No additional volunteer opportunities at this time.

About TSC Alliance

Location:

8737 Colesville Road Suite 400, Suite 400, Silver Spring, MD 20910, US

Mission Statement

To improve quality of life for everyone affected by tuberous sclerosis complex by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support.

Description

The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC.

We drive research, improve quality care and access and advocate for all affected by the disease. The TSC community is our strongest ally. The collaboration of individuals and families, along with the partnership of other organizations, fuels our work to ensure people navigating TSC have support-and hope-every step of the way.

  • Our work wouldn’t be possible without the commitment of our community. Advancing research requires dedicated investigators, individuals with TSC, government and industry. Improving quality of and access to care demands healthcare professionals and dedicated volunteers. Raising awareness takes the work of families, individuals and volunteers.
  • We use a comprehensive approach to improve quality of life for people with TSC-fueling promising research while making sure that, day-to-day, individuals are diagnosed early and receive the highest quality care available. We also have a voice in policy around healthcare access and federal funding for TSC research.

CAUSE AREAS

Children & Youth
Community
Health & Medicine
Children & Youth, Community, Health & Medicine

WHEN

Sat Oct 19, 2019
11:30 AM - 04:00 PM

WHERE

Edwin Warner Park, Shelter #117311 US Hwy 100Nashville, TN 37221

(36.06091,-86.906)
 

SKILLS

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Group

REQUIREMENTS

  • Must be at least 16
  • Four hours per month, 8 -10 hours on event day

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