• 4 people are interested
 

Support Group Coordinator

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ORGANIZATION: Birth Defects Research for Children

  • 4 people are interested
BDRC Mommy

Birth Defect Research for Children (BDRC) is headquartered in Orlando, but provides information, support and parent matching to families of children with birth defects all over the nation.

BDRC also sponsors the National Birth Defect Registry, a research project designed by a collaboration of scientists, to collect data on factors that may be linked to birth defects. Registry data have been used for studies, advocacy and as a source of hypotheses about the causes of birth defects.

On BDRC's web site www.birthdefects.org, there a a Family Support Center that lists support groups that assist families who have children with different types of birth defects.

The Support Group Coordinator position would involve updating these support groups on-line and contacting each group currently on our web site about participating in the National Birth Defect Registry.

More opportunities with Birth Defects Research for Children

No additional volunteer opportunities at this time.

About Birth Defects Research for Children

Location:

976 LAKE BALDWIN LN STE 104, ORLANDO, FL 32814, US

Mission Statement

According to the National Research Council, nearly 50% of all pregancies in the U.S. end in the loss of the baby or a child born with a birth defect or chronic health problem. We provide these families with reliable information on their child's disabilities, referrals to helpful resources and opportunities to connect with families who have children with similar problems.

We also created the National Birth Defect Registry that collects data on the causes of birth defects that can lead to birth defect prevention. Registry data has been used for research studies and community advocacy and presented to state and federal agencies as well as in media forums.

Description

Birth Defects Research for Children has many available programs and research projects that we are currently working on. Each individual projects that we create has a specific purpose and value to our organization.

Some of the programs we have are:
*You Are Not Alone
*Parent Matching
*National Birth Defect Registery
*and many other that are still in the process.

If you would like more information on our organization, please feel free to visit our website and other social networks.

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

976 Lake Baldwin LaneSuite 104ORLANDOORLANDO, FL 32814

(28.560102,-81.32736)
 

SKILLS

  • Basic Computer Skills
  • Internet Research
  • Microsoft Office Suite

GOOD FOR

  • People 55+

REQUIREMENTS

  • Background Check
  • Must be at least 18
  • This is an in office position, M-W and/or F, 12 hours per week.

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