Myeloma Link Community Outreach Volunteers: Connecting African American Communities to Information,

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African Americans have twice the incidence of multiple myeloma as white Americans. Recent studies show that African Americans are significantly less likely to receive the newest treatments and combination therapies, and more likely to experience treatment delays, including transplant delays. Myeloma Link is a new Leukemia & Lymphoma Society initiative that seeks to raise awareness among African Americans about incidence and treatment of this type of blood cancer and provide information, support resources and access to care.

MAKE A DIFFERENCE

The Leukemia & Lymphoma Society's (LLS) Detroit, MI Chapter is looking for volunteers to help provide community outreach to the African American community about Multiple Myeloma. The Myeloma Link Community Outreach Volunteer Program is an opportunity for community members, survivors, and caregivers to support Myeloma Link by becoming actively involved. Your involvement will be instrumental to ensure our efforts to provide education and raise awareness in the community around Multiple Myeloma are effective, significant and long-lasting.

WE NEED YOU!

The Leukemia & Lymphoma Society is partnering with a wide range of trusted partners within African American communities, including churches, senior centers and community health centers, in order to:

1) Raise awareness among African Americans about the disparities in multiple myeloma incidence and treatment, the signs and symptoms of the disease, and the resources that LLS offers to patients and families dealing with blood cancer.

2) Provide information and resources that will equip African American myeloma patients with the knowledge and tools needed to seek novel, state-of-the-art treatments, including clinical trials, in a timely manner.

What is a Myeloma Link Community Outreach Volunteer?

A Myeloma Link Community Outreach Volunteer can be:

o a patient or caregiver who has been impacted by myeloma or any other blood cancer

o a community member committed to raising awareness of Myeloma among African Americans.

A Myeloma Link Community Outreach Volunteer:

• is trained to provide support to those who would like more information or have a personal connection to myeloma.
• helps support local staff in planning, coordinating and attending outreach events to provide Myeloma Link materials.
• plays a key role in extending the reach of the program into many communities.

Myeloma Link Ambassadors make connections.

• Reach out and introduce LLS to churches, institutions and other community-based organizations that serve the African American community.
• With guidance from the Patient Access Manager or Volunteer Development Manager, coordinate and support outreach events such as Myeloma Sundays, Myeloma Awareness Programs and other Myeloma Link educational activities as appropriate.
• Help LLS follow-up with prospects and education program participants.
• Increase awareness of Myeloma Link by attending other community-based outreach events such as health fairs.

All prospective volunteers will receive Myeloma Link training and resources.

IF YOU ARE INTERESTED IN BECOMING A COMMUNITY OUTREACH VOLUNTEER, PLEASE VISIT WWW.LLS.ORG/PAVOLUNTEER TO COMPLETE AN ONLINE APPLICATION OR CONTACT SADIE at SADIE.SZRAMA@LLS.ORG FOR MORE INFORMATION. ONCE RECEIVED, YOUR APPLICATION WILL BE REVIEWED AND YOU WILL BE CONTACTED REGARDING NEXT STEPS.