During these uncertain times, how can we help?
See below to access our COVID-19 Resource Hub, and to explore our growing directory of both COVID-19-specific and virtual volunteering opportunities.
No computer skills?
Write cards and stuff envelopes
We sure could use some help!
Turner Syndrome affects 1 in every 2,000 females and we are expanding our team of skilled volunteers. This may be the perfect opportunity you have been looking for! Obtain practical office experience and work with a team of talented people. There are both long term and short term assignments for individuals of all skill level.
Brush up on your skills, use new technology, and help make the world a better place. If you are new to the job market or have been out of work force for a while and are looking for re-entry, join our team as a volunteer. Your experience with this national nonprofit promises to be a solid resume and confidence builder.
There are many opportunities. We will situate you where your skill level, availability, and interest intersect.
Sampling of opportunities for you to consider:
Our goal is to find 3-4 people for part-time or full-time engagement to drive this mission forward.
Please apply today!
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
We'll work with your schedule.
1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730
February 6, 2020