- A group opportunity. Invite your friends.
-
2 people are interested
Triangle Business Network Charity Golf Tournament
ORGANIZATION: Hemophilia of North Carolina
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
2 people are interested
The Triangle Business Networking (TBN) is hosting a Charity Golf Tournament as a fundraising effort to help local non-profit organizations in the Triangle. For the inaugural year of the event, we are pleased that TBN has chosen Hemophilia of North Carolina (HNC) as the recipient of their fundraising efforts.
Monday, October 15, 2018Brier Creek Country Club
Raleigh, NC Volunteer shifts are from 7:30am to 2:00pm. Volunteers are welcome to stay through the end of the Awards Dinner but are free to leave once the golf tournament ends at 2pm. Volunteer positions are:
- 50/50 Raffle Rovers (2-3)
- Beverage Cart Drivers (2)
- Closest to the Pin and Par 5 Assist observers (4-6)
- Long Putt contest coordinators and observers (2-3)
- Awards and prizes (2-3)
- Coordination of sponsors (1-2)
- Others (as deemed necessary) (4-6)
More opportunities with Hemophilia of North Carolina
No additional volunteer opportunities at this time.
About Hemophilia of North Carolina
Location:
260 Town Hall Drive, Suite A, Morrisville, NC 27560, US
Mission Statement
Hemophilia of North Carolina is a non-profit organization whose goal is to assist, involve and educate persons affected by bleeding disorders. We promote opportunities for improving the quality of life for persons with hemophilia and all bleeding disorders in the state of North Carolina.
Description
Hemophilia of North Carolina is a non-profit 501c3 organization which has been assisting the bleeding disorders community in the state for over 30 years. We are members of the National Hemophilia Foundation, Hemophilia Federation of America, Community Health Charities of North Carolina and the NC Center for Nonprofits. We support families and individuals through ongoing educational programs, peer support groups, patient advocacy, emergency financial assistance, scholarships and summer camps for our children.
Hemophilia is a genetically transmitted bleeding disorder in which the blood does not clot normally. There is no cure for hemophilia. While treatment exists for most forms of the disease, it is costly and may require lifelong infusions of replacement clotting factor. In about 1/3 of cases there is no know prior family history of hemophilia. Rather the disorder results from a spontaneous genetic mutation.
The bleeding disorders community was devastated in the late 80's when the nation's blood supply became contaminated by the HIV virus. Over 90% of Americans with severe hemophilia became infected with AIDS and more than 50% of those infected have died. Through the advocacy efforts of those in the hemophilia community, laws were passed and continue to be in effect to make sure the nation's blood supply remains safe to all Americans. Members of the community and their national organizations continue to remain vigilant in tracking the collection and processing of the blood supply in this country.
The most common bleeding disorder in women is von Willebrand disease. According to recent guidelines released by the National Heart Lung and Blood Institute, up to 1% of the population is affected and most don't even know it.
For more information about Hemophilia of North Carolina and how you can help, please contact us. Together we can make a difference!
CAUSE AREAS
WHEN
WHERE
Brier Creek Country Club9400 Club Hill DriveRaleigh, NC 27617
DATE POSTED
September 19, 2018
SKILLS
GOOD FOR
- Teens
- People 55+
- Group
REQUIREMENTS
- If you can only volunteer for a part of the event, please let us know.