• A group opportunity. Invite your friends.
  • 1 person is interested
 

rideATAXIA Philly - The Ride to Cure FA - Registration Volunteer

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ORGANIZATION: FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

  • A group opportunity. Invite your friends.
  • 1 person is interested
Cycling

Registration Volunteers will check-in participants the morning of the ride giving them their participant packet. Event volunteers will receive a t shirt and lunch (served 11-1pm)

Event Description- The10th annual rideATAXIA Philly will be held at Montgomery County Community College in Blue Bell on Sunday, October 14th 2018 and will offer multiple route options on scenic country roads, followed by delicious post ride food prepared by Outback Steakhouse.

rideATAXIA Philly benefits the Friedreich's Ataxia Research Alliance (FARA)- a nonprofit organization dedicated to research leading to treatments and a cure for Friedreich's ataxia (FA). FA is a debilitating, life shortening degenerative neuro-muscular disorder.

rideATAXIA cycling events across the United States have raised invaluable awareness for FA and over $4 million to support FA research since 2007.

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About FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

Location:

PO BOX 1537, Downingtown, SPRINGFIELD, PA 22151, US

Mission Statement

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

Description

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia.

FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others that share this commitment, FARA believes it can help bring forward effective treatments and a cure for FA.

CAUSE AREAS

Advocacy & Human Rights
Community
People with Disabilities
Advocacy & Human Rights, Community, People with Disabilities

WHEN

Sun Oct 14, 2018
06:30 AM - 10:00 AM

WHERE

Montgomery County Community CollegeBlue Bell, PA 19422

(40.165394,-75.282906)
 

SKILLS

  • Fundraising
  • Bicycling
  • Community Outreach

GOOD FOR

  • Teens
  • Group

REQUIREMENTS

  • Must be at least 15
  • 3.5 hours

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