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Charity Coordinator
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
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DONATE TO THIS
ORGANIZATION -
2 people are interested
We are looking for motivated and experienced party planners and fundraisers to plan a benefits for Turner Syndrome Foundation.
Interested candidates should apply and possess own form of transportation, speak and write fluent English, and be willing to work as part of a team effort.
Application: https://form.jotform.com/53066358197161
Question? Email volunteer@tsfusa.org or call (732) 847-3385
2 More opportunities with Turner Syndrome Foundation
Opportunities
About Turner Syndrome Foundation
Location:
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Mission Statement
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Description
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
CAUSE AREAS
WHEN
WHERE
1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730
DATE POSTED
August 15, 2018
SKILLS
- Fundraising
- Event Planning / Management
- Marketing Strategy & Planning
GOOD FOR
N/A
REQUIREMENTS
- One event at a time!
- Must adhere to the volunteer policies of the Turner Syndrome Foundation