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Turner Syndrome Foundation

  • 29 people are interested
Turner Syndrome Foundation Exhibit Booth
Volunteers advocate on behalf of 1 in 2,000 baby girls that survive with Turner Syndrome.

Put the FUN in Fundraising! We are assembling a team of people with diverse interests to fundraise in support of the Turner Syndrome Foundation, an advocacy organization established in 2009. Anyone can apply and share ideas they would like to implement in support of TSF. Bring your passion for making a difference in the lives of others. If you have development experience, ie. grant writing and major fundraising, even better! We need your support at this critical time.

Turner Syndrome affects 1 in 2,000 females.
You can help! The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and develop educational programs to increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
TSF is a registered 501( c)(3) organization incorporated in New Jersey

Here Are Some Quick Statistics:
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Work alone or with a group to:

  • Effectively fundraise!
  • Identify, plan, and host fundraising activity(s)
  • Conduct prospect research
  • Seek financial or in-kind donations of supplies, goods or services
  • Set goals & achieve them!
  • Execute all work in a highly organized & professional manner
  • Excellent communication skills; speaking, creative writing, marketing
  • Computer & telecommunications experience

If you are looking to do good, help others do good, and make a difference, please complete the volunteer application form. https://turnersyndromefoundation.org/talent-application/

Feel free to contact our office for assistance 732-847-3385. Thank you!


1 More opportunity with Turner Syndrome Foundation

About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Advocacy & Human Rights
Health & Medicine
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity, with no fixed address.

SKILLS

  • Sales Coaching & Training
  • Event Planning / Management
  • Fundraising

GOOD FOR

N/A

REQUIREMENTS

  • 10+/- hours per week
  • Excellent communication, telephone & computer skills

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