49 people are interested
49 people are interested
Lead the creation and development of the raregenomics.org site to ensure an intuitive and user-centered design and help our organization's mission of providing hope for those with rare diseases.
- Bachelor’s Degree and minimum 2 years of experience as a web designer
- Proficiency with Adobe Creative Cloud, Squarespace
- Knowledge of HTML, CSS, and web development tools desired
- Experience or interest in the medical, research and non-profit fields
- Provide maintenance and content management of the website raregenomics.org
- Assist in analysis of market data (campaign results, conversion rates, traffic, etc.) to contribute to creation of marketing strategies.
- Create, test, and maintain web pages including copy and photo content pages.
About Rare Genomics Institute
8504 Firestone Blvd., #198, Downey, CA 90241, US
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
This is a Virtual Opportunity with no fixed address.
July 17, 2021
- Web Design / UX
- Web Design
- Few hours per week