The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia(FA).
Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Kids get fully disabled by age 18 and need full time care for the rest of there short lives. Most FA patients die before the age of 30. There is currently no cure or treatment for this disease.
Most individuals have onset of symptoms of FA between the ages of 5 and 18 years. Adult or late onset FA is less common, <25% of diagnosed individuals, and can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.
looking for Volunteers to help with online awareness and fundraising, we will train how to do the digital marketing activities like posting a comment on facebook, generating likes, starting an online campains, posting to groups, setup Gofundme pages, Email campains etc
Looking for social media savy volunteers to help raise funds and bring awareness of FA
- Marketing Analytics
- Social Media / Blogging
- Content Management Systems
- Marketing & Communications (Mar/Com)
- Public Relations
- Brand Development & Messaging
Good Match For
Teens People 55+ Group
Requirements & Commitment
- 1 to 2 hours a week and mostly online