- A group opportunity. Invite your friends.
-
7 people are interested
HNC Family Festival & 5K Walk for Bleeding Disorders
ORGANIZATION: Hemophilia of North Carolina
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
7 people are interested
The Hemophilia of North Carolina (HNC) Family Festival and 5K Walk is HNC's largest fundraising event of the year. In previous years this event was part of the National Hemophilia Foundation Walk program. Now an independent HNC event, it remains dedicated to preventing the complications of bleeding disorders. The proceeds will help our organization continue to provide programs and services to our North Carolina community.
We need volunteers to help with set-up, pass out t-shirts, set up lunch, assist with activities, cheer on walkers and more! Please join us for this fun volunteer opportunity.
More opportunities with Hemophilia of North Carolina
No additional volunteer opportunities at this time.
About Hemophilia of North Carolina
Location:
260 Town Hall Drive, Suite A, Morrisville, NC 27560, US
Mission Statement
Hemophilia of North Carolina is a non-profit organization whose goal is to assist, involve and educate persons affected by bleeding disorders. We promote opportunities for improving the quality of life for persons with hemophilia and all bleeding disorders in the state of North Carolina.
Description
Hemophilia of North Carolina is a non-profit 501c3 organization which has been assisting the bleeding disorders community in the state for over 30 years. We are members of the National Hemophilia Foundation, Hemophilia Federation of America, Community Health Charities of North Carolina and the NC Center for Nonprofits. We support families and individuals through ongoing educational programs, peer support groups, patient advocacy, emergency financial assistance, scholarships and summer camps for our children.
Hemophilia is a genetically transmitted bleeding disorder in which the blood does not clot normally. There is no cure for hemophilia. While treatment exists for most forms of the disease, it is costly and may require lifelong infusions of replacement clotting factor. In about 1/3 of cases there is no know prior family history of hemophilia. Rather the disorder results from a spontaneous genetic mutation.
The bleeding disorders community was devastated in the late 80's when the nation's blood supply became contaminated by the HIV virus. Over 90% of Americans with severe hemophilia became infected with AIDS and more than 50% of those infected have died. Through the advocacy efforts of those in the hemophilia community, laws were passed and continue to be in effect to make sure the nation's blood supply remains safe to all Americans. Members of the community and their national organizations continue to remain vigilant in tracking the collection and processing of the blood supply in this country.
The most common bleeding disorder in women is von Willebrand disease. According to recent guidelines released by the National Heart Lung and Blood Institute, up to 1% of the population is affected and most don't even know it.
For more information about Hemophilia of North Carolina and how you can help, please contact us. Together we can make a difference!
CAUSE AREAS
WHEN
WHERE
1400 Aviation ParkwayLake Crabtree County ParkMorrisville, NC 27560
DATE POSTED
September 22, 2017
SKILLS
GOOD FOR
- Teens
- People 55+
- Group
REQUIREMENTS
- Must be at least 14
- Shifts vary from 4 to 6 hours depending on duties.
- Volunteers under age 16 should be accompanied by a responsible adult