- A group opportunity. Invite your friends.
-
32 people are interested
Volunteer for 5K for Healthy Kidneys
ORGANIZATION: Alport Syndrome Foundation, Inc.
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
32 people are interested
This annual family-friendly run/walk is held every spring to celebrate life and promote awareness of Alport Syndrome as well as the risks of chronic kidney disease, and the benefits of organ donation.
We are in need of volunteers to assist with course direction, registration, water station, set up and clean up.
Alport Syndrome is a rare hereditary disease that causes kidney failure, hearing loss and vision problems. There is currently no treatment proven to prevent the development of kidney failure in people with Alport Syndrome; however, early diagnosis is essential as there are medications to delay the progression of the disease. There is no cure for Alport Syndrome.
Funds raised will go toward outreach, awareness and patient support.
More opportunities with Alport Syndrome Foundation, Inc.
No additional volunteer opportunities at this time.
About Alport Syndrome Foundation, Inc.
Location:
PO Box 4130, Scottsdale, AZ 85261, US
Mission Statement
The Alport Syndrome Foundation's mission is to improve the lives of those affected by this rare genetic kidney disease through education, empowerment, advocacy, and research to find more effective treatments and a cure.
Description
ASF is the leading independent non-profit organization in the United States serving and giving a voice to the Alport Syndrome community.
Alport Syndrome is a rare genetic kidney disease that causes kidney failure, hearing loss and vision problems. Fifty percent (50%) of boys with the predominant form of the disease will experience kidney failure by age 25 and 90% by age 40, most often preceded by hearing loss. Girls are affected too, with some impacted similarly to boys, but most having a later disease progression.
CAUSE AREAS
WHEN
WHERE
Kiwanis Park6111 South All-America WayUse Baseline Road entranceTempe, AZ 85283
DATE POSTED
February 11, 2019
SKILLS
GOOD FOR
- Kids
- Teens
- People 55+
- Group
REQUIREMENTS
- 3-4 hours
- Please wear closed-toed shoes