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2 people are interested
Mobile COMPLAN Content Developer
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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2 people are interested
The Rare Genomics Institute (RG) is an international non-profit which connects rare disease patients to cutting-edge genomic solutions for diagnosis and treatment. RG partners sequencing sites to provide our patients with genome sequencing services.
We are looking for talented content creator to produce the COMPLAN content in preparation for our Rare Genomics Patient-centric Mobile App, v.0.1 launch.
Responsibilities:
Define strategy messaging for each USERS CLUSTERS being guided by the Persona profiles and Users journey touch-points, but also your own user’s research.
Develop eSurveys to interact and better comprehend end-users needs
Develop each audience based messaging to be used on push notifications:
General announcements for users, change of terms and conditions, new features and versions launches.
Ad-hoc automated personalized messaging for every users cluster: Patients and caregivers clusters based on:
Condition and Symptoms related news
Specialist recommendations: Healthy habits, symptoms reduction, "How-to-best " manage their condition.
Did you know that"... section: key Insights about their related rare genetic condition.
Auto-generated Content:
Conditions related automated messaging: Identify potential information sources to create personalized content focused on related treatments, new published studies, recommendations from other Patients community members.
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
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This is a Virtual Opportunity with no fixed address.
DATE POSTED
December 19, 2017
SKILLS
GOOD FOR
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REQUIREMENTS
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