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Kiawah Marathon 2017, South Carolina
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
DONATE TO THIS
ORGANIZATION -
2 people are interested
Support the Turner Syndrome Foundation & Add Marathon Experience to your resume!
Complete volunteer form for this event. Here you will select your role and day/time for a shift. There is something for everyone!
https://form.jotform.com/70555450249154
This is a fun opportunity.. Don't miss out!!
Turner Syndrome Foundation
Office: 1 Bethany Rd, Bldg 1, Ste 5, Hazlet, NJ 07730
Mailing: P. O. Box 726, Holmdel, NJ 07733
Tele#: (732) 847-3385
More opportunities with Turner Syndrome Foundation
No additional volunteer opportunities at this time.
About Turner Syndrome Foundation
Location:
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Mission Statement
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Description
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
CAUSE AREAS
WHEN
WHERE
Kiawah Island Golf ResortOne Sanctuary Beach DriveKiawah Island, SC 29455
DATE POSTED
February 25, 2017
SKILLS
- Photography
- People Skills
- Baking
- Fundraising
- Relationship Building
- Community Outreach
GOOD FOR
- Kids
- Teens
- People 55+
- Group
REQUIREMENTS
- Must be at least 16
- 5 hour shifts
- Must adhere to NJM policies and sign waiver to participate.