• 9 people are interested
 

Non-Profit Administration Intern

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ORGANIZATION: THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

  • 9 people are interested

The Global Foundation for Peroxisomal Disorders (GFPD) is seeking an intern to help implement critical activities designed to fulfil our mission. As the Non-Profit Administration Intern, students will play a unique role in the organization by supporting projects such as the family registry and Salesforce, Family and Scientific Conferences, research projects, fund development, and basic day-to-day management.

Essential Duties & Responsibilities:

  • Manage systems for recording and tracking campaign and organizations outreach contacts
  • Help manage online databases and create or support systems for shared online resources
  • Develop and design materials, organize existing materials
  • Provide support for planning, scheduling, and implementing meetings including communication and organizational calendar
  • Research and help development grant requests

This is an unpaid internship.

Internship activities and educational oversight will be coordinated by the Director of Operations.

More opportunities with THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

No additional volunteer opportunities at this time.

About THE GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS

Location:

5147 S HARVARD AVE SUITE 181, TULSA, OK 74135, US

Mission Statement

The mission of the GFPD is to fund and promote peroxisome disorder research and to assist families and professionals through educational programs and support services related to Zellweger spectrum disorders. The GFPD serves hundreds of families worldwide from 30 countries and counting. Our goal is to provide emotional support along with practical guidance through our family support groups online and our biannual Family and Scientific Conferences and other events.

Description

In 2010, parents Shannon Butalla and Melissa Gamble joined to co-found the Global Foundation for Peroxisomal Disorders, bringing together families impacted by peroxisome disorders, including Peroxisome Biogenesis Disorder-Zellweger Spectrum Disorder (PBD-ZSD) and the related single enzyme peroxisomal disorders.

When the GFPD was incorporated and received its 501(c) (3) public charity designation in 2010, we were a small parent support group of approximately 50 families. Just five years later, the GFPD registry connects more than 300 families from 30 countries and we have a Scientific Advisory Board comprised of leading researchers and physicians in the field of peroxisomal disorders. Our biennial Family and Scientific Conferences bring together families and professionals from around the world to meet and collaborate on ways to improve the lives of patients with peroxisomal disorders.

Through these connections with medical and scientific professionals and family support networks, our foundation is a resource for families who have received a diagnosis of a peroxisomal disorder in the Zellweger spectrum. Our Board of Directors is made up of parents of children who have been diagnosed with disorders in this spectrum plus community allies. Members of our Board of Directors, Scientific Advisory Board, and other volunteers, have dedicated their time and talents to the many families who make up the GFPD.

CAUSE AREAS

Children & Youth
Health & Medicine
People with Disabilities
Children & Youth, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

5147 S. Harvard Avenue, Suite 181Tulsa, OK 74135

(36.087788,-95.93882)
 

SKILLS

  • Resource Development / Management
  • Data Entry
  • Program Management
  • Donor Management
  • Grant Writing / Research
  • Management

GOOD FOR

N/A

REQUIREMENTS

  • Driver's License Needed
  • Must be at least 16
  • 5 hours weekly
  • Good organization skills, self-motivated, attention to detail, & multi-tasking.

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