Board Members needed
ORGANIZATION: PANS RESEARCH AND ADVOCACY INITIATIVE
Please visit the new page to apply.
PANS Researich and Advocacy Initiative (PRAI) is a non-profit dedicated to advocating on behalf of families suffering from PANDAS/PANS.
We need board members who are experienced in non-profit board membership and connected in the Virginia community.
Specifically, we need individuals EXPERIENCED in the following positions (from more to less responsibility) to complete the team:
1) Treasurer
2) Secretary
3) Social Media Coordinator
4) Non-profit leader/manager to help lay foundation and growth plan.
ideally, people with backgrounds in legislative advocacy in VA, increasing awareness for rare disease, mental health, pediatrics, medicine, and/or non profit management Preferred.
If you are interested in applying, you first need to sign up on our volunteer Through our website pansadvocacy.org
Once you have completed that step, you next need to specify which position you are applying for along with a copy of your resume that includes a good contact number as we are having a meeting soon to prepare for several project launches slated for January 2017. Thank you for your consideration.
More opportunities with PANS RESEARCH AND ADVOCACY INITIATIVE
No additional volunteer opportunities at this time.
About PANS RESEARCH AND ADVOCACY INITIATIVE
Location:
7624 HAMPTON GREEN DR, CHESTERFIELD, VA 23832, US
Mission Statement
PRAI is an organization advocating on behalf of Virginia families who suffer from pediatric auto-immune neuropsychiatric syndromes (PANDAS/PANS) by providing emotional and social support, investing in data-driven research and education, and raising awareness in the community.
Description
PRAI exists to advocate on behalf of families suffering from PANDAS/PANS. These disorders have crippling effects on families and there is little to no support among the community to provide resources.
PANDAS stands for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It is used to describe children who have a sudden onset of symptoms such as Obsessive Compulsive Disorder (OCD) and/or tic disorders, following a strep infection (namely "strep throat" or Scarlet Fever). It is a misdirected immune response resulting in inflammation of a child’s brain.
We strive to connect the medical community to doctors and researchers who are knowledgable on diagnosis and treatment options. And raise awareness among educators, clinicians, and families throughout the state of VA while providing emotional and social support to parents navigating the waters of these complex disorders. Ultimately, we hope to raise funding for research into the mechanism that causes the conditions and find a cure.
If caught early, a long course of antibiotics can halt the auto-immune response, however, if undiagnosed and not properly treated it can leave permanent brain damage. It is said the average family goes to 8 doctors and spends 3 years seeking help before getting diagnosed.
CAUSE AREAS
WHEN
WHERE
7624 Hampton green driveChesterfield, VA 23832
DATE POSTED
December 18, 2016
SKILLS
- Resource Development / Management
- Program Management
- Crisis Intervention
- Donor Management
- Fundraising
- Grant Writing / Research
GOOD FOR
N/A
REQUIREMENTS
- 10-15 hours a month
- Must live in Virginia