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Turner Syndrome Foundation

  • A group opportunity. Invite your friends.
  • 8 people are interested
Turner Syndrome Foundation Exhibit Booth
Volunteers advocate on behalf of 1 in 2,000 baby girls that survive with Turner Syndrome.

If you are interested in charitable event planning and like to network with local businesses, this opportunity is for you!

  • You will not be responsible for out of pocket anything.
  • You will not handle money.
  • You will be the local contact to assist in setting up and publicizing events in your community. Get involved to help raise awareness and support for Turner Syndrome Foundation.

Stand together to raise awareness and support for Turner Syndrome Foundation. Volunteers will receive special recognition and a certificate for volunteering! Individuals and groups are invited!

If you are earning community service hours, let us know and we will document your time and award you with a volunteer certificate.

Should you have any questions, please call (800) 594-4585 for assistance. Thank you!

1 in 2,000 females are affected. With your help - we can help!

www.TurnerSyndromeFoundation.org

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Advocacy & Human Rights
Children & Youth
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Fundraising
  • Retail / Sales
  • Community Outreach
  • Social Media / Blogging
  • Networking

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Group

REQUIREMENTS

  • Your commitment will commensurate with your success.
  • 100% of the proceeds benefits Turner Syndrome Foundation

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