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5 people are interested
Grant Writer Needed
ORGANIZATION: Noonan Syndrome Foundation
Please visit the new page to apply.
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5 people are interested
The Noonan Syndrome Foundation is currently seeking the assistance of an experienced grant writer.
More opportunities with Noonan Syndrome Foundation
No additional volunteer opportunities at this time.
About Noonan Syndrome Foundation
Location:
2121 W Imperial Hwy #474, La Habra, CA 90631, US
Mission Statement
Our mission is to Support, Eduate, and Advocate for those with Noonan Syndrome.
Description
WHAT IS NOONAN SYNDROME?
Noonan syndrome (NS) is a variably expressed, multisystem disorder with an estimated prevalence of 1 in 1,000 - 2,500 births. People with NS may experience bleeding issues, congenital heart defects including hypertrophic cardiomyopathy and/or pulmonary valve stenosis, lymphatic abnormalities, small stature/growth issues, feeding and gastrointestinal issues, failure to thrive, hypertelorism, learning disorders, autism, unexplained chronic pain, chiari malformation, hypotonia, ptosis, skeletal malformations, laryngomalacia, tracheomalacia, opthamology issues, orthopaedic issues, oncology issues and much, much more. Because of the variability in presentation and the need for multidisciplinary care, it is essential that the condition be identified and managed comprehensively.
HISTORY OF NOONAN SYNDROME
In 1962, Jacqueline Noonan, a pediatric cardiologist, identified 9 patients whose faces were remarkably similar and who, in addition, had short stature, significant chest deformities, and pulmonary stenosis. In 1968, Dr Noonan published a case series with these 9, plus an additional 10 patients. The eponym "Noonan Syndrome" was adopted in recognition of Dr Noonan, because she was the first to indicate that this condition occurred in both genders, was associated with normal chromosomes, included congenital heart defects, and could be familial.
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
October 20, 2016
SKILLS
- Internet Research
- Grant Writing / Research
- Basic Computer Skills
- Microsoft Office Suite
- Data Entry
GOOD FOR
- People 55+
REQUIREMENTS
- Must be at least 21
- Flexible Hours