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Huntington's Disease Society of America Kansas Opportunities

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ORGANIZATION: Huntington's Disease Society of America, National Headquarters

  • A group opportunity. Invite your friends.
  • 2 people are interested

The Huntington's Disease Society of America in Kansas is in great need of volunteers to help support the HDSA"s mission of improving the lives of those with Huntington's Disease within Kansas.

We welcome postive and passionate volunteers for the following volunteer opportunites:

Kansas Team Hope walk June 4, 2016 is in need of volunteers & walkers! Please sign up to help here: http://hdsa.donordrive.com/event/manhattanks/

Volunteer Coordinator - The volunteer coordinator actively recruits volunteers, posts volunteer opportunities, maintains the volunteer list, trains new volunteers, and regularly communicates with volunteers. The coorinator also acts as the day-of contact for volunteers at events

Webmaster - We are in need of a webmaster to regularly post new events/update nformation onto the Kansas website and Facebook page. No prior webmaster experience necessary. Time commitment is 5-10 hours/month.

Fundraising Chair - The fundraising chair actively looks for new fundraising opportunities within the community while at the same time helping to oversee the current fundraising activities and managing the budget to ensure that revenues and expenses are in-line with the 2016 budget.

Law Enforcement Advocate - Provides outreach to law enforcement and local physicans to educate them about Huntington's Disease. Law Enforcement Toolkits and powerpoint presentations are provided.

Auction Chair - The auction chair researches, collects and provides set-up and volunteer support for Affiliate event auctions. Previous auction supporting documents are available.

Grant Writer - No experience neccesary! Cut/paste grants using a grant tmeplate as well as search new grant opportunities!

We are excited to with with you!! Please reach out today!

More opportunities with Huntington's Disease Society of America, National Headquarters

No additional volunteer opportunities at this time.

About Huntington's Disease Society of America, National Headquarters

Location:

505 Eighth Avenue, Suite 902, New York, NY 10018, US

Mission Statement

The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families.

To promote and support research and medical efforts to eradicate Huntington's Disease.

To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.

To educate the public and health professionals about Huntington's disease.

Description

Huntington's Disease (HD) is an inherited, progressively degenerative brain disorder that results in a loss of both mental faculties and physical control. Symptoms usually appear in an individual between 30-50 years of age and progress over a 10-25 year period. HD affects the individuals ability to think, speak and walk. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications. Presently, there is no effective treatment or cure. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

CAUSE AREAS

Board Development
Community
Health & Medicine
Board Development, Community, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

505 Eighth AvenueSuite 902New York, NY 10018

SKILLS

  • Grant Writing / Research
  • Fundraising
  • CSR / Volunteer Coordination
  • Community Outreach
  • Graphic Design / Print
  • Interactive/Social Media/SEO

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Group

REQUIREMENTS

N/A

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