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HDSA Las Vegas Team Hope Walk

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ORGANIZATION: Huntington's Disease Society of America Las Vegas Affiliate

  • A group opportunity. Invite your friends.
  • 21 people are interested
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The Huntington’s Disease Society of America (HDSA) is excited to announce the Las Vegas Team Hope Walk to be held at Lorenzi Park (10/28/2024). Team Hope Walk events represent the largest local opportunity for members of the HD community to come together with friends, family members, neighbors and the community at large to raise necessary awareness and funds to support HDSA.

Every child of a parent with HD has a 50/50 chance of carrying the faulty gene that causes HD. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s - simultaneously.

Volunteers are needed for the following:

- Las Vegas Affiliate Sponsorship and Grants (ongoing and NO EXPERIENCE NECESSARY)
- Las Vegas Affiliate Board Members and leaders who like to meet new people and help make a difference!
- Team Hope Walk Planning Committee
- Team Hope Walk Day of Volunteers: Registration, Raffle Ticket Sales, Set-Up, Clean Up

For other Affiliate opportunities please contact lasvegas@hdsavolunteer.org or complete the Volunteer Intake Form (https://hdsa.org/volunteer-opportunities).

THANK YOU!

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About Huntington's Disease Society of America Las Vegas Affiliate

Location:

27702 Crown Valley Pkwy Suite D-4 #336, LADERA RANCH, CA 92694, US

Mission Statement

The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States. Among the catalog of resources made possible by the organization, HDSA supports 21 Centers of Excellence at major medical facilities throughout the U.S., funds research into the biology of the disease to facilitate the development of treatments and cures, hosts more than 170 support groups for people with HD, their families, caregivers and people at-risk, and is the premiere resource on Huntington’s disease for medical professionals and the general public. The Society is comprised of 51 local chapters and affiliates across the country with its headquarters in New York City.

Description

Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 250,000 are at-risk. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

CAUSE AREAS

Board Development
Community
Health & Medicine
Board Development, Community, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

Lorenzi Park3333 W Washington AveLas Vegas, NV 89107

(36.17948,-115.18521)
 

SKILLS

  • Resource Development / Management
  • Grant Writing / Research
  • Fundraising
  • Donor Management
  • CSR / Volunteer Coordination
  • Community Outreach

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Group

REQUIREMENTS

N/A

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