-
6 people are interested
Grant Writer
ORGANIZATION: Huntington's Disease Society of America - New Jersey Chapter
Please visit the new page to apply.
-
6 people are interested
The New Jersey Chapter of HDSA is in need of a take charge individual to help take advantage of opportunities to help the Huntington's families in need of support and assistance.
Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington's Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and their families.
HDSA's network of chapters, affiliates, HDSA Centers of Excellence, social workers and support groups provides a seamless connection for help, education, and outreach to HD families and healthcare professionals across the United States.
Thank you for your consideration.
More opportunities with Huntington's Disease Society of America - New Jersey Chapter
No additional volunteer opportunities at this time.
About Huntington's Disease Society of America - New Jersey Chapter
Location:
PO Box 268, Ridgewood, NJ 07451, US
Mission Statement
The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.
Description
The purpose of our chapter is:
- To help individuals affected by Huntington's disease and their families through support and services
- To educate both the public and health care professionals about Huntington's disease
- To promote and support research directed at discovering a treatment and ultimately a cure for Huntington's disease.
While there is still no cure for HD, today there is more hope than ever that we can beat this disease. Until then, our chapter will strive to provide support and sustenance to our HD families, knowing that while research provides hope for the future, we must provide care for our HD community today. We have become an active community, educating ourselves, sharing information, and advocating for ourselves and our loved ones.
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
January 3, 2019
SKILLS
- Grant Writing / Research
GOOD FOR
N/A
REQUIREMENTS
- Orientation or Training
- As needs dictate