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  • A group opportunity. Invite your friends.
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Awareness Ambassador for Turner Syndrome

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Turner Syndrome Foundation

  • A group opportunity. Invite your friends.
  • 79 people are interested
Awareness Badge
Mother and daughter at a local radio station spreading words of awareness to all who will listen. Be creative!

Turner Syndrome Foundation, a US based NGO, is expanding its voluntary awareness ambassador program. The awareness ambassador program is committed to raising awareness for a women's health issue that affects 1 in 2,000 girls and women! As a voluntary ambassador, you will share information in your network and community: individuals, groups, agencies and health care professionals, educators and legislators.

Voluntary awareness ambassadors will be interviewed, onboarded and provided with branded materials to disseminate. Representatives can work at their own pace with one goal in mind, to help girls and women lead healthy lives.

The Turner Syndrome Foundation awareness tool kit is branded and created exclusively to empower volunteers in their outreach efforts. Volunteers will have access to the Awareness Took-Kit.

Sign up today! We look forward to working with you.
https://turnersyndromefoundation.org/volunteer_take_action/talent-application/


12 More opportunities with Turner Syndrome Foundation

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

Advocacy & Human Rights
Health & Medicine
Women

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Public Relations
  • Networking
  • Organization
  • Public Speaking
  • Relationship Building
  • Verbal / Written Communication

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Group

REQUIREMENTS

  • Orientation or Training
  • Flexible
  • Utilize approved materials provided in the Turner Syndrome Foundation's Awareness Tool Kit.

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