The Putting Rare Diseases Patients First! organization is a 501(c)(3) non profit. The organization provides education about the clinical trial and drug development process to patients with rare diseases, and parents of sick children with rare diseases. This education is provided online via the internet using WEBEX as a tool. The PRDPF! organization is now seeking volunteer Board members. The Board members should have a link to the rare diseases space, and be passionate about serving the needs of this community, or have a rare disease or be parents of children with rare diseases.
PRDPF! Board of Director volunteer positions are as follows:
- VP of Fund Raising - must have experience raising funds for non profits
- VP of Pharma and Biotech Liaison - must currently work within the pharmaceutical or biotech space and have experience working in the area of rare diseases drug development
Physician Liaison - for PharmDs and Physicians with experience in rare diseases
Vice President of Patient Liaison - this person must have experience in rare diseases, and be connected to rare disease patient foundations
Committee members are needed to assist the VPs in managing their programs. These activities will be on your own time. As you serve the rare disease patient community, you will derive a great deal of personal satisfaction.
- Marketing & Communications (Mar/Com)
- Strategic Planning
- Public Relations
Good Match For
Requirements & Commitment
- As much as feasible
- Other characteristics desired in volunteers:- Self motivated- Organized< p