- A group opportunity. Invite your friends.
-
11 people are interested
Organizers and Volunteers Needed! Conquer Chiari Walk Across America
ORGANIZATION: Conquer Chiari
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
11 people are interested
The Conquer Chiari Walk Across America is a series of local awareness and fundraising walks held across the country on the 3rd and 4th weekend of September (Chiari Malformation Awareness Month) every year. Walk planning begins in January.
In 2023, the event was held both live & virtually involving thousands of participants and raised more than $300,000 for research and other patient centered programs. Since its inception in September 2008, the Conquer Chiari Walk Across America has been held in 260 cities in 48 states with over 105,000 participating walkers, and has raised over 6.4 million dollars.
Our continued success is due to the many dedicated Organizers & Volunteers who devote so much of their time and energy, our generous sponsors from across the nation and most importantly the participants who make the CCWAA such a special event each and every year.
Want to know more? Please visit: https://walk.conquerchiari.org/
More opportunities with Conquer Chiari
No additional volunteer opportunities at this time.
About Conquer Chiari
Location:
320 OSPREY CT, WEXFORD, PA 15090, US
Mission Statement
The C&S Patient Education Foundation is dedicated to improving the experiences and outcomes of Chiari & syringomyelia patients by: Providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent, informed decisions. Raising awareness among family, friends, and the general public so that they can understand what patients are going through and are better able to provide support. Raising awareness among, and providing accurate, up-to-date information to, the medical community, so that errors in diagnosis and treatment are reduced. Sponsoring research to advance the understanding of these conditions and in the end Conquer Chiari.
Description
The C&S Patient Education Foundation is a 501(c)(3) non-profit organization dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research. Conquer Chiari is our informal name, our goal, and our website. Chiari and syringomyelia are complicated diseases, which require complex solutions. No single action will beat them, but the combined efforts of many people, on many fronts will. For far too long these diseases have destroyed people's lives, it’s time to fight back.
Since 2004...
Education:
380+ Research Articles / 50+ Personal Stories / 40+ Informative Posters & Handouts / 12+ Presentations - Nearly 5,000 copies of the book, Conquer Chiari: A Patient’s Guide, sold world-wide
Awareness:
Walk Across America - 47 states, 100,000+ walkers since inception - September 2019 Chiari Awareness Month social media posts reached nearly 1 million people
Research:
Largest NGO funder of Chiari research in the world, with $4.1+ million in grants - These grants have generated 70+ published, peer-reviewed journal articles - Grants have also led to an additional $1 million in NIH Chiari focused research grants
Established the world’s first multi-disciplinary, independent Chiari focused research facility, the Conquer Chiari Research Center - Launched the innovative Chiari1000 (chiari1000.uakron.edu) - Organized 4 professional research conferences
CAUSE AREAS
WHEN
WHERE
This is a Virtual Opportunity with no fixed address.
DATE POSTED
May 23, 2024
SKILLS
- Public Advocacy
- Fundraising
- Community Outreach
- Networking
- Organization
GOOD FOR
- Kids
- Teens
- People 55+
- Group
REQUIREMENTS
- Must be at least 18
- In order to have multiple walks in multiple cities go as smoothly as possible, Conquer Chiari and Site Organizers work for nearly 8 months together to ensure success. We walk the road together!
- Internet access- you will join a private organizer group page on Facebook where organizers and management communicate, share ideas, tips, and updates.