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Neurofibromatosis Midwest

Board of Directors

Neurofibromatosis (NF) Midwest is looking for professionals who are interested in serving on the NF Midwest Board. We need your direction, energy, and oversight to help people with neurofibromatosis, to raise awareness, and to fund research and clinical care.

Meetings can be virtual.

The board welcomes all passionate, energetic applicants, and is especially looking for people with any of the following....

  1. Experience in the Medical Community
  2. Experience in Development
  3. Experience or some familiarity with Neurofibromatosis
  4. Experience in business

Please, call 630-945-3562 or email info@nfmidwest.org for more information.

1 More opportunity with Neurofibromatosis Midwest

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This is a Virtual Opportunity.
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About Neurofibromatosis Midwest


473 Dunham Rd, Suite 3, St. Charles, IL 60174, US

Mission Statement

NF Midwest is committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support in the states of Illinois, Indiana, Iowa, Kentucky, Wisconsin, and the eastern half of Missouri. NF Midwest C.A.R.E.S.!


NF Midwest became an official non-profit in December of 1981 and was founded by parents who had children with the rare disorder neurofibromatosis, They were looking for treatments, clinics, education, support, and community. This is still the basis of NF Midwest's work today. We have funded research projects including the discovery of the NF gene in the 90s' and we've helped increase federal research. NF Midwest continues to support research to find treatments and ultimately a cure for NF. We also work with scientists, clinics, and pharmaceutical companies to improve care and represent the NF community. NF Midwest also works to educate and support the NF community in the Midwest. We provide support and education to people personally and via social media etc. We also hold educational seminars and webinars. Additionally, we send children with NF to camp, offer scholarships, and work to create future leaders.

Board Development
Children & Youth
Health & Medicine


We'll work with your schedule.


This is a Virtual Opportunity with no fixed address.



  • People 55+


  • Approx 5 to 10 hours per month

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