Conquer Chiari
Cause Area
- Advocacy & Human Rights
- Community
- Education & Literacy
- Health & Medicine
Location
320 OSPREY CTWEXFORD, PA 15090 United StatesWebsite:
http://www.conquerchiari.org
Organization Information
Mission Statement
The C&S Patient Education Foundation is dedicated to improving the experiences and outcomes of Chiari & syringomyelia patients by: Providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent, informed decisions. Raising awareness among family, friends, and the general public so that they can understand what patients are going through and are better able to provide support. Raising awareness among, and providing accurate, up-to-date information to, the medical community, so that errors in diagnosis and treatment are reduced. Sponsoring research to advance the understanding of these conditions and in the end Conquer Chiari.
Description
The C&S Patient Education Foundation is a 501(c)(3) non-profit organization dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research. Conquer Chiari is our informal name, our goal, and our website. Chiari and syringomyelia are complicated diseases, which require complex solutions. No single action will beat them, but the combined efforts of many people, on many fronts will. For far too long these diseases have destroyed people's lives, it’s time to fight back.
Since 2004...
Education:
380+ Research Articles / 50+ Personal Stories / 40+ Informative Posters & Handouts / 12+ Presentations - Nearly 5,000 copies of the book, Conquer Chiari: A Patient’s Guide, sold world-wide
Awareness:
Walk Across America - 47 states, 100,000+ walkers since inception - September 2019 Chiari Awareness Month social media posts reached nearly 1 million people
Research:
Largest NGO funder of Chiari research in the world, with $4.1+ million in grants - These grants have generated 70+ published, peer-reviewed journal articles - Grants have also led to an additional $1 million in NIH Chiari focused research grants
Established the world’s first multi-disciplinary, independent Chiari focused research facility, the Conquer Chiari Research Center - Launched the innovative Chiari1000 (chiari1000.uakron.edu) - Organized 4 professional research conferences
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