Birth Defects Research for Children

Mission Statement

According to the National Research Council, nearly 50% of all pregancies in the U.S. end in the loss of the baby or a child born with a birth defect or chronic health problem. We provide these families with reliable information on their child's disabilities, referrals to helpful resources and opportunities to connect with families who have children with similar problems.

We also created the National Birth Defect Registry that collects data on the causes of birth defects that can lead to birth defect prevention. Registry data has been used for research studies and community advocacy and presented to state and federal agencies as well as in media forums.