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ORGANIZATION: Turner Syndrome Foundation

Be the Change

Turner syndrome affects 1 in every 2,000 females and it is the second leading genetic disorder in women. This complex condition requires a lifetime of specialized care. Turner Syndrome Foundation seeks to support clients with phone calls to support their individualized needs. We seek candidates preferably with social work or counseling experience and will provide training and oversight. This is not a hybrid position.

The preferred candidate(s) must have a desire to help others navigate the diagnosis. The client services team provides patients and caregivers with resources for the TS journey for all stages of life. Providing helpful information and support makes a difference in the client's awareness of resources, self-advocacy, and the path to good health and overall well-being. While there may not always be a resource available to meet every need, the personal interaction with clients has proven to make a tremendous impact on the TSF mission, program development, and most significantly on the long-term outcome of patients.

Volunteers will work at the Hazlet, NJ office. Clients are supported virtually via web, phone, email, or mail. Interactions with clients are generally held virtually with exception.

The position may include the following tasks:

  • Communicate with clients via phone, email, and by mail
  • Create and manage individual cases
  • Record detailed notes
  • Assign and complete tasks
  • Listen and communicate empathetically to find a resolution
  • Research and share resources to meet the client's needs
  • Collaborate with staff to provide exceptional client support
  • Schedule followup tasks
The candidate(s) must evoke the following characteristics:
  • Excellent communications skills
  • Professional demeanor
  • Optimistic outlook
  • Good listener
  • Problem solver
  • Pleasant personality
  • Detail-oriented
  • Empathetic
  • Conscientious
  • Responsible
Apply here: https://turnersyndromefoundation.org/talent-application/

Thank you!

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About Turner Syndrome Foundation

Location:

1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US

Mission Statement

Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.

Description

Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome

CAUSE AREAS

Advocacy & Human Rights
Health & Medicine
Women
Advocacy & Human Rights, Health & Medicine, Women

WHEN

We'll work with your schedule.

WHERE

1 Bethany RdBuilding 1, Suite 5Courtyard 1 EntranceHazlet, NJ 07730

(40.41579,-74.177345)
 

DATE POSTED

April 24, 2024

SKILLS

  • Case Work / Management
  • Patient Care
  • People Skills
  • Counseling / Mental Health
  • Social Work

GOOD FOR

N/A

REQUIREMENTS

  • Background Check
  • Orientation or Training
  • 10-15 hours per week - flexible days/hours

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