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7 people are interested
Communications Associate
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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7 people are interested
Contribute to your community while using your professional expertise, and work with talented peers in a rewarding, non-profit environment! The Rare Genomics Institute (RG) is making a difference in the rare disease community . RG is a nonprofit organization that helps families in need of genome research.
Job Description:
Assist with coordination, writing, & editing for patient/inquirer/expert communication vehicles both on and offline, including but not limited to emails, newsletters.
Assist with coordination of updates & improvements on RG's websites
Manage BeHeard's Social Media presence via Facebook, email marketing, Twitter, Blogs, etc. as directed by management
Develop & update general and program brochures, media kits, key messages, fact sheets, & other collateral material as needed.
Assist with coordination of media outreach & coverage with media releases, TV/radio interviews, feature stories, etc.
Other duties as assigned
Qualifications:
PhD or MA in the Sciences
BA or Higher degree in Writing, English, Public or Media relations, Communications, or related field or demonstrated min. of 2 yrs experience in one or more of these areas
Highly organized, attention to detail, results oriented
Exceptional verbal, written, & presentation skills
Strong editing skills
Proficiency in Microsoft Office computer programs
Basic design/layout experience desired
- Knowledge of electronic media such as Websites, e-Newsletters, Social Media,etc
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
WHERE
1133 19th St. N.WWashington, DC 20201
DATE POSTED
June 1, 2017
SKILLS
GOOD FOR
N/A
REQUIREMENTS
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