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4 people are interested
Outreach Coordinator
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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4 people are interested
The Rare Genomics Institute aims to advance research beyond genome sequencing for some of the most challenging rare disease cases. We recognize that in the majority of cases sequencing data alone will not be actionable for patients. Therefore, we are leveraging our broad network of expert biomedical researchers to crowd source scientific ideas, experiments, and analyses that may lead to a better understanding of rare diseases. www.raregenomics.org .
The outreach coordinator will coordinate RG’s community outreach and engagement initiatives. He/she will work to increase the organization’s presence in the community and will build relationships with individuals, citizen groups and other organizations in support of RG’s work. The outreach coordinator will directly contribute to increasing RG’s capacity to advance research, for some of the most challenging rare disease cases, by developing its outreach programs and increasing community support for the organization.
Duties and Responsibilities
Develop and implement outreach strategies to increase RG’s presence in the community
Identify relevant community events and coordinate participation in these events
Coordinate online outreach activities, including social media and website updates Coordinate production and distribution of promotional campaign materials
Actively reach out to community groups and organizations to explore partnership opportunities
Contribute to communications, outreach, marketing, public relations and media relations activities as required
Qualifications
Excellent organizational, written and oral communication skills Project management experience
Detail oriented and committed to meeting deadlines
Excellent interpersonal skills
Works well independently
This position requires a minimum 6-month commitment for 1-2 days per week during office hours (Monday to Friday from 9:00 am to 5:00 pm). Flexible schedule of approximately 10 hours per week, dependent upon timing of organizational commitments and deadlines.
Benefits and recognition
This position provides valuable experience for Non-Profit Management, Fundraising and/or Event Management students; individuals with an interest in gaining experience in the non-profit sector or in the healthcare field; and anyone with a passion for finding a cure for rare diseases. Volunteers are highly valued members of the RG team and contribute to making a significant difference in RG’s ability to advance research beyond genome sequencing for some of the most challenging rare disease cases.1 More opportunity with Rare Genomics Institute
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
WHERE
2657 Annapolis RoadHanover, MD 21076
DATE POSTED
June 27, 2016
SKILLS
GOOD FOR
N/A
REQUIREMENTS
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