- A group opportunity. Invite your friends.
-
DONATE TO THIS
ORGANIZATION -
12 people are interested
Marathon Help Tempe Arizona
ORGANIZATION: Turner Syndrome Foundation
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
DONATE TO THIS
ORGANIZATION -
12 people are interested
If you are looking for a great way to get involved and give back, join Team TSF at this fantastic event!
No experience is needed! Stand together to raise awareness and support for Turner Syndrome Foundation. Volunteers will receive special recognition with a Team TSF wristband! All Gildan Esprit de She volunteers will receive a complimentary event crew shirt and will enjoy tastes from the market. Individuals and groups are invited!
If you are earning community service hours, let us know and we will document your time and award you with a volunteer certificate.
Should you have any questions, please call (732) 847-3385 for assistance. Thank you!
To gather more information, apply here. The even coordinator will assist you in shift assignment:
https://form.jotform.com/61033809008146
2 More opportunities with Turner Syndrome Foundation
Opportunities
About Turner Syndrome Foundation
Location:
1 Bethany Road, Building 1, Suite 5, Hazlet, NJ 07730, US
Mission Statement
Turner Syndrome affects 1 in 2,000 females. We can help! The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs that will increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women with Turner Syndrome.
Description
Turner syndrome is a random mutation of chromosomes that occurs spontaneously at the time of conception and affects females. There is an absence of all or part of the second X chromosomes in some or all of the cells in the body. As an advocacy organization, our vision is to increase awareness, education and research for this complex disorder. Statistics show that Turner Syndrome takes the lives of 97% or more female fetuses. Our goal is to provide the 1-3% of survivors, who account to 1 in 2,000 females) with a chance at living a full and productive life while gaining additional knowledge and therapies for improvements. If a child does not exhibit classic TS characteristics, but is short and falling below the curve on the growth chart, has delayed pubertal development, presents verbally gifted, or expresses academic or social challenges, she may have TS. Diagnosis is confirmed with a Karyotype blood test. An endocrinologist will monitor the patient, screen for other conditions and provide specialized medical care, and treatments. Early interventions can promote a positive self-esteem and improved prognosis.
1-3% of Turner Syndrome babies will survive birth
10-20% of all miscarriages are babies lost to Turner Syndrome
For every 2,000 females, one will be affected by Turner Syndrome
CAUSE AREAS
WHEN
WHERE
Tempe Beach ParkTempe, AZ 85281
DATE POSTED
April 13, 2016
SKILLS
GOOD FOR
- Group
REQUIREMENTS
- Must be at least 13
- Volunteer time is less than 4 hours
- Physical endurance to work a shift at the marathon. Wear comfortable clothing!