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3 people are interested
Special Events Coordinator
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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3 people are interested
Do good for your community while using your professional expertise. Work with talented peers on a rewarding non-profit cause related program. The Rare Genomics Institute is making a difference. RG is a nonprofit organization that helps families in need of genome research.
ResponsibilitiesClosely collaborate with Development Director and ED to provide the most effective processes for cultivating individuals
Help develop and execute Rare Genomics annual fundraising plan
Create detailed project completion plans, estimates and schedules
Implement and develop over time a portfolio of prospects While developing ongoing relationships with major donors, corporations, and individual donors.
Creating and executing a strategy for a large sustained base of annual individual donors
Prepare regular project performance reporting to the Project Management team
Overseeing organization of special events, leading and managing projects/events
Manage the implementation of Salesforce and oversee staff responsible for data entry and gift processing
Developing and tracking proposals and reports for all foundation and corporate fundraising
A degree in marketing, biomedical science or a related discipline are preferred
Strong knowledge of Project Management processes and tools
Excellent organizational skills and ability to manage multiple projects efficiently
Excellent oral and written communication skills for effective communication to clients, internal staff and the management team
Ability to demonstrate tact, diplomacy and initiative when working with others;
Passion for learning the latest interactive technologies and techniques
Able to thrive in a fast-paced, self-starter environment
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
WHERE
1133 19th St. N.WWashington, DC 20201
DATE POSTED
February 7, 2016
SKILLS
GOOD FOR
N/A
REQUIREMENTS
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