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5 people are interested
Legal Consultant
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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5 people are interested
Do good for your community while using your professional expertise. Work with talented peers on a rewarding non-profit cause related program. Rare Genomics Institute is making a difference. Rare Genomics Institute is a non-profit organization that helps families in need of genome research.
Rare Genomics Institute is seeking a volunteer legal consultant to provide advice and guidance on a wide range of legal matters. The ideal candidate is knowledgeable in contract law, non-profits, intellectual property, HIPAA, privacy law, healthcare law, grants, contracted awards, etc.
Requirements:
Law Degree
Experience providing legal advice to non-profit organizations
Able to independently draft and revise contracts
Excellent writing and communication skills
Knowledge of HIPAA, privacy law, and health care law
Experience reviewing contracts, media documents, charters and legal documents to ascertain vulnerabilities for the organization
Skills:
Familiarity with issues related to managing scientific data such as genomic, proteomic and metabolomic helpful
A high level of organization, diplomacy and focus, ability to work under tight deadlines, the ability to work both independently and with a team
Familiarity with biotechnology and medical research environments.
Passion to help patients with rare diseases
Desire to help grow an exciting non-profit organization
Ability to multitask, including working across several complex projects
Ability to learn quickly and make difficult decisions independently
Ability to meet tight deadlines
Attention to detail and strong analytical and organizational skills
Ability to demonstrate tact, diplomacy and initiative when working with others
- Ability to communicate complex legal and/or business issues succinctly and effectively
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
WHERE
2657 Annapolis RoadHanover, MD 21076
DATE POSTED
March 8, 2016
SKILLS
- Research
- Grant Writing / Research
- Law Enforcement
GOOD FOR
N/A
REQUIREMENTS
N/A