Community Manager (Volunteer)

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Contribute to your community while using your professional expertise, and work with talented peers in a rewarding, non-profit environment. The Rare Genomics Institute (RG) is making a difference in the rare disease community. Rare Genomics is a nonprofit organization that helps families in need of special medical testing fundraise for and manage their genome sequencing process. Do you enjoy helping people and connecting with people? Please consider joining our team as a community manager!

Community Manager needed

As a RG Community Manager you will work with the Scientific Education Team and be the voice of the RareShare Disease Community Platform. Community Manager will work alongside the Social Media Manager and team members to develop and execute leading campaigns designed to build rich, meaningful relationships with rare disease audience. This position navigates across multiple clinical ecosystems in real-time, has a passion for compelling content, a fast-paced environment and is an early adopter of the latest and greatest in rare diseases. Community manager can quickly understand user demands and translate rare disease community signals into actionable insights.

Position Responsibilities:

• Engage effectively with users on rareshare social media communities, influencers, patients

• Enhance the RareShare identity and awareness through social media campaigns and engagement

• Manage outbound and inbound user communication; address feedback and inquiries and become a trusted companion to the rareshare patient community

• Ensure all outbound content is formatted and tagged correctly for reporting purposes; reply appropriately to public commentary in a timely manner

• Develop and execute community strategies and content calendars

• Create compelling, quality social content in addition to assets produced by the scientific team

• Effectively communicate content mandatories and ideas to scientific team members

• Monitor conversations and generate insights for future strategy recommendations

• Promote best practices and stay up to date on changes in the rareshare platform landscape

• Develop innovative strategies to drive traffic to rareshare platform posts and marketing initiatives

Desired Skills and Experience:

• A degree in management, biomedical science or a related discipline are preferred

• Excellent organizational skills and ability to manage multiple projects efficiently

• Excellent oral and written communication skills for effective communication to clients, internal staff and the management team

• Ability to demonstrate tact, diplomacy and initiative when working with others;

• Passion for learning the latest interactive technologies and techniques

• Able to thrive in a fast-paced, self-starter environment