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9 people are interested
Podcast Organizer (Volunteer)
ORGANIZATION: Rare Genomics Institute
Please visit the new page to apply.
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9 people are interested
Contribute to your community while using your professional expertise, and work with talented peers in a rewarding, non-profit environment. The Rare Genomics Institute (RG) is making a difference in the rare disease community. Rare Genomics is a nonprofit organization that helps families in need of special medical testing fundraise for and manage their genome sequencing process. Do you enjoy helping people and organizing events? Please consider joining our team as a podcast organizer!
Podcast Organizer Needed
As a RG Volunteer Podcast Organizer, you will be a part of the Scientific Education team that produces educational podcasts for our patient based audience. You will help the team in finding scientific experts and conduct disease specific background research for reporting trips. You will also pitch ideas for upcoming podcasts, transcribe and conduct interviews and assist with the production of podcast and web projects at RG.
Position Responsibilities:
Conduct literature reviews through available resources
Conduct research for experts and correspondents to support disease related podcast/webinar
Transcribe interviews/podcast/patient stories
Write blog posts and announcements as assigned
Fact-check scientific literature as needed
Help track interview archives on internal web site
Contribute to editorial and web meetings
Contribute to monthly podcast production
Secure permission to license/upload audio material
Help maintain show archives and equipment as assigned
Perform various administrative tasks
Desired Skills and Experience:
Hold a professional or advanced degree
Ability to write, meet deadlines, and work independently
Ability to type and work on PC-based programs like Windows XP, Word and Excel, and possess general computer skills, including Internet-based research
Excellent organizational and communication skills
Demonstrated interest in scientific journalism, rare diseases and documentaries
Daily tracking of rare disease in print and media
- Knowledge of web hosting
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About Rare Genomics Institute
Location:
8504 Firestone Blvd., #198, Downey, CA 90241, US
Mission Statement
At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.
Description
Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.
Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!
CAUSE AREAS
WHEN
WHERE
2657 Annapolis RoadHanover, MD 21076
DATE POSTED
April 12, 2016
SKILLS
- Organization
- Social Media / Blogging
- Grant Writing / Research
- Microsoft Office Suite
- Verbal / Written Communication
GOOD FOR
N/A
REQUIREMENTS
N/A