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4 people are interested
New Mexico Board Member Needed!
ORGANIZATION: Huntington's Disease Society of America - South Central Region
Please visit the new page to apply.
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4 people are interested
We are searching for volunteers to serve on our board in New Mexico. The Huntington's Disease Society of America New Mexico Affiliate board helps organize events, support families with HD, serve as ambassadors to raise awareness, and works together to educate the community about HD. Board members can be anywhere in New Mexico.
The board is seeking committed members to help with established events and planning for next year!More opportunities with Huntington's Disease Society of America - South Central Region
1 ReviewNo additional volunteer opportunities at this time.
About Huntington's Disease Society of America - South Central Region
Location:
6545 W. 44th Avenue, Suite 1, Wheat Ridge, CO 80033, US
Mission Statement
HELP FOR TODAY. HOPEFOR TOMORROW
The Society is a National, voluntary health organization dedicated to improving the lives of people with Huntington's disease and their families.
To promote and support research and medical efforts.
To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.
To educate the public and health professionals about Huntington's disease.
Description
Huntington's disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which there is presently no cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Cases of juvenile HD have been diagnosed in children as young as two years of age. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD. Each of their siblings and children has a 50 percent risk of developing the disease, therefore 250,000 are at risk. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.
The research being done on Huntington's Disease is at the forefront of genetic science. Recently, Dr. Francis Collins, Director of the National Institutes of Health, commemorated the 20th Anniversary of the discovery of the gene that causes HD. He spoke about how this landmark collaborative effort helped pave the way for the Human Genome Project. Twenty years later, HD research continues to provide valuable insights that are guiding the development of potential treatments for HD and many other genetic diseases.
CAUSE AREAS
WHEN
WHERE
5800 Osuna RdAlbuquerque, NM 87107
DATE POSTED
September 5, 2014
SKILLS
GOOD FOR
- Teens
- People 55+
REQUIREMENTS
N/A