- A group opportunity. Invite your friends.
-
17 people are interested
Videographer Needed for Conference
ORGANIZATION: DebRA of America
Please visit the new page to apply.
- A group opportunity. Invite your friends.
-
17 people are interested
debra of America is a national nonprofit supporting those with Epidermolysis Bullosa(EB) - The Worst Disease You’ve Never Heard Of.
On July 22-25, 2018 we will be holding our debra Care Conference at the Sheraton Grand at Wild Horse Pass in Chandler, Arizona. This is a multi-day event made specifically for EB families and the professional community to access the best information, discover new ideas and connect with other EB families from all over the country. It is an extraordinary experience for those with EB and their caretakers to make long lasting connections and learn from experts in the field.
We are looking for a videographer who can assist with filming attendee testimonials/interviews as well as speaker footage for up to 2 days during the conference. debra will pay for parking at the hotel, and for lunch.
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder, affecting 1 out of every 20,000 live births. There are many variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. There is no cure.
If you have any questions, please contact meghan@debra.org. More information about debra and the conference can also be found here: http://www.debra.org/2018debracareconference
More opportunities with DebRA of America
No additional volunteer opportunities at this time.
About DebRA of America
Location:
75 Broad Street, Suite 300, New York, NY 10004, US
Mission Statement
Dystrophic Epidermolysis Bullosa Research Association of America, Inc .
The mission of DebRA of America is to find a cure for Epidermolysis Bullosa (EB) and to improve the health and well being of all individuals and families in the world affected by all forms of the disorder.
Description
Debra of America is the only national non-profit organization dedicated to funding research for treatment and a cure and providing direct services for those with Epidermolysis Bullosa (EB). EB is a rare genetic disease that causes the skin to be so fragile that the slightest friction can cause severe blistering--inside and outside the body. Children born with EB are often referred to as "butterfly children" because their skin is as fragile as butterfly's wings. Today there is no cure and the only treatment for butterfly children is wound care, bandaging and pain management. Caring for open wounds through bandaging and avoiding infection is a painful, daily struggle for those living with EB.
CAUSE AREAS
WHEN
WHERE
Sheraton Grand at Wild Horse Pass5594 W Wild Horse Pass RdChandler, AZ 85226
DATE POSTED
April 27, 2018
SKILLS
- Photography
- Video Production
GOOD FOR
- Teens
- People 55+
- Group
REQUIREMENTS
- Must be at least 18
- 8 hours for up to 2 days