• 26 people are interested
 

Health Information Volunteer needed

Save to Favorites

ORGANIZATION: Chris Elliott Fund dba EndBrainCancer Initiative

  • 26 people are interested

Reporting to the Health Information Concierge & PR Coordinator the Health Information Volunteer supports the achievement of the Foundation's mission to end brain cancer through education, awareness, advocacy and research by reading articles and alerts related to brain cancer research and providing written summaries that help CEF leadership identify information and trends that will lead to positive patient support outcomes.

Responsibilities:

  • Read up to 20 alerts / articles per day dealing with brain cancer research and news to identify breaking news and innovations in treatment of brain cancer.
  • Write a bullet point synopsis of each article for the Program Director, Patient Support Services/Health Information Concierge and/or PR Coordinator.
  • Assist with patient support services outreach efforts including mailings, phone calls, and shipping to health professional conferences.
  • Assist with updating and maintaining patient resources, peer support program, treatment center database, resource directory, and other departmental programs.
  • Protect the integrity and confidentiality of clients’ protected health information.
  • Assemble patient information packets.
  • Assist with special projects as assigned.

Requirements:

Education:

  • Bachelor’s Degree in public health, nursing, social work or related field.

Experience:

  • At least two (2) years relevant work experience, or equivalent combination of education and experience.
  • Experience reviewing and summarizing clinical regulatory documents (e.g., clinical study protocols, clinical study reports, investigator brochures, etc.).
  • Experience with neuro-oncology preferred.

Required Knowledge, Skills and Abilities:

  • Must demonstrate a clear, high-quality writing style in the English language, and have the ability to independently analyze and synthesize data from a broad range of disciplines.
  • Ability to execute tasks in a timely manner with a high degree of accuracy.
  • Ability to work cross-functionally and collaboratively with CEF leadership, staff, volunteers, clients and patient support services partners.
  • Microsoft Word, Excel and Outlook proficient. Stays abreast of the latest brain cancer research, information and services as well as HIPPA regulations. Motivated by service, humility and compassion for helping people.
  • Thoroughly committed to the mission and goals of the Chris Elliott Fund.

Physical Requirements:

Regularly required to sit and talk or hear. Frequently required to walk and use fingers, tools, or controls. Occasionally required to stand and reach with hands and arms, and lift up to 25 lbs. Specific vision abilities required include close vision, color vision, and depth perception.

1 More opportunity with Chris Elliott Fund dba EndBrainCancer Initiative

Request failed
{{ opp.title }}
This is a Virtual Opportunity.
{{ opp.location }}
We'll work with your schedule
{{ opp.dateStr }}
{{ opp.timeStr }}
More
Opportunities

About Chris Elliott Fund dba EndBrainCancer Initiative

Location:

16150 NE 85th St, #201, Redmond, WA 98052, US

Mission Statement

The EndBrainCancer Initiative | Chris Elliott Fund is dedicated to ensuring that all patients diagnosed with brain cancer, a brain tumor, or metastatic disease to the brain have equal access to advanced diagnostics, treatments, specialists and clinical trial participation. We believe that IMMEDIATE ACCESS to these options provides this patient community with the best HOPE for survival and sustained quality of life. We partner with industry, patients, researchers, advocacy groups, medical teams, hospital networks and others to educate patients and their caregivers so they can have empowered conversations with medical teams.

Description

The End Brain Cancer Initiative (EBCI), formerly the Chris Elliott Fund, has spent over 20 years working to support and guide patients and their caregivers through their medical journey after a diagnosis of Brain Cancer, a Brain Tumor, or Metastatic Disease to the Brain.

Glioblastoma (GBM) is the most common and aggressive form of adult brain cancer. Diagnosed patients have an average prognosis of 12-15 months with the current Standard of Care. Only about 5% of GBM patients will survive more than 5 years, a statistic that has not moved in over 50 years. We aim to educate patients and their caregivers on all forms of available treatment, including clinical trials. We believe that a fully informed patient can have a stronger conversation with their medical team and thereby gain access to better treatments. We hope that this will lead to improved survivorship and a better quality of life overall.

EBCI supports their mission through 3 service programs:

  • Patient Disease Education, Awareness and Outreach programs and events
  • Advocacy and Access Initiatives
  • "Direct Connect" Service Program

Our Patient Disease Education programs occur several times per year, sharing information on the latest developments in treatments, both drug and device, and in advanced diagnostic tools through our website, disease education materials, social media/digital services, speaking opportunities, and customized 1:1 virtual/in person meetings with patients/caregivers.

CAUSE AREAS

Advocacy & Human Rights
Computers & Technology
Health & Medicine
Advocacy & Human Rights, Computers & Technology, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

14959 NE 95th StRedmond, WA 98052

(47.68588,-122.14084)
 

SKILLS

GOOD FOR

N/A

REQUIREMENTS

N/A

Report this opportunity

We're sorry, this opportunity is no longer active.

Chris Elliott Fund dba EndBrainCancer Initiative has 2 more opportunities, please check them out.

See Opportunities