• 31 people are interested
 

HDSA Upstate NY Board Member

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ORGANIZATION: Huntington's Disease Society of America

  • 31 people are interested
HDSA Upstate New York

The Chapter Board of Directors is the governing body of the Chapter responsible for ensuring that all Chapter activities are conducted in accordance with the HDSA Strategic Plan, Chapter Agreement, Plan of Work, and HDSA policies and procedures. The Chapter Board is led by an Executive Committee consisting of the President, Vice President, Secretary and Treasurer.

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About Huntington's Disease Society of America

Location:

505 8th Ave., Suite 902, New York, NY 10018, US

Mission Statement

The Huntington's Disease Society of America (HDSA) is dedicated to finding a cure for Huntington's Disease (HD) while providing support and services for those living with HD and their families. HDSA promotes and supports both clinical and basic HD research, aids families in coping with the multi-faceted problems presented by HD and educates the families, the public and health care professionals about Huntington's Disease. Our HD families give a face to Huntington's Disease. HDSA is its voice.

Description

Huntington's Disease (HD) is an inherited, progressively degenerative brain disorder that results in a loss of both mental faculties and physical control. Symptoms usually appear in an individual between 30-50 years of age and progress over a 10-25 year period. HD affects the individuals ability to think, speak and walk. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications. Presently, there is no effective treatment or cure. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

CAUSE AREAS

Board Development
Health & Medicine
People with Disabilities
Board Development, Health & Medicine, People with Disabilities

WHEN

We'll work with your schedule.

WHERE

Any where Upstate New Yorkrochester, NY 14602

DATE POSTED

September 14, 2017

SKILLS

  • Program Management
  • Fundraising
  • Community Outreach

GOOD FOR

  • People 55+

REQUIREMENTS

  • 3-5 hours per month

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